ERT Questionnaire

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Document Provider:
NIHR HTA
Developer:
R Anderson
Contact Details:
Copyright:
Copyright 2012 NIHR, HTA. The text and layout of HTA publications is Copyright Queen's Printer and Controller of HMSO 2012
Country of Origin:
United Kingdom

Study Completed:
Yes
Year:
2012

DIRUM ID:
86
DIRUM Listing:
02/04/2014

Disease Categories

Endocrine & metabolic

Populations - Age

Age Range: 0 - 99

Populations - Sex

Male and Female

Administration Methods

In person
Via post

Instrument Types

Recall questionnaire

Person(s) Completing Instrument

Patient
Parent/carer

Settings of Care

Community

Nature of Intervention

Management of care

Items of Resource Being Measured

GP
Inpatient
Community nurse
Practice nurse
Outpatient
A&E
Employer
Informal carer
Day hospital
Social services
Patient incurred
Occupational therapy
Social services day care

Other Characterisation Details

Frequency Of Economic Data Collection - once
Maximum Recall Period - 10 to 12 months

Primary References

Journal article: Wyatt K, Henley W, Anderson L, Anderson R, Nikolaou V, Stein K, et al., The effectiveness and cost of enzyme replacement and substrate reduction therapies: a longitudinal cohort study of people with lysosomal storage disorders., Health Technology Assessment, 2012, 16, 1-527 [DOI: 10.3310/hta16390]

Instrument Resource


Conditions of Use

  • With written permission of copyright holder
  • Other - This work was funded by the NIHR Health Technology Assessment programme (project number 05/04/01) and was published in full in Health Technology Assessment. The views and opinions expressed therein are those of the authors and do not necessarily reflect those of the HTA programme, NIHR, NHS or the Department of Health.

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